Tuesday, April 10, 2012

Home

Scott was able to come home last Friday evening, his ANC was wonderfully high his doctor was out of town and Dr Judy said "time to go home". Scott is loving being in a bed that actually fits. His friend shaved his hair off last Thursday giving him a relief from the red snow storm. We renewed his pickup registration, he got himself a IPhone and trying to find joy in being home with the "C" yet again. No word on transplant yet or what the plan will be.

Aunt Mary Ann Leo's sister died Thursday morning in LaCrosse Care Center. She had been battling leg sores for a few years and they got the best of her. She will be missed by our family especially Jim and myself. Leo has a brother Jack in Anaconda last year his brother Eugene passed as did he. I wished the extended family would of spent time with her.

A week ago Sadie became engaged to Mr Reece Hopkins of Heber UT. Their date is Aug 11, 2012. Pretty exciting for them and for us. She met him in Denver where he is going to school for his second degree. They will marry in Spokane temple and reception late afternoon in our back yard. They will remain in Denver area to live.

Little Sydney is 4 weeks old today. She was born the day we were informed that Scotts cancer had returned for sure. Both dates will remain in our minds even after dementia has hit. She is still so very very tiny and oh so precious.




Friday, March 30, 2012

Attitude is 99 percent of the battle!

Two weeks today Scott has been back at his home away from home. He is right on schedule for the killing of the marrow. He has done really well with the chemo this time mostly tries sleeping thru it with a few helpful meds and having a much better time this go around. All his sibs but one have been tested as Jim and myself have for the HLA matching. It will still be a month or more before the results are in so please don't ask. The closest match will be his siblings so that is where we start. It is so strange what questions people ask or the pathetic looks given our way, you read it in their eyes. There is many answers online as I find my own answers there when doctors can't answer me. We need all your prayers and faith to help Scott get thru this. His mission has been a wonderful support to him and to our family Pres and Sister Wilkey and all the missionaries and ward members that have fasted and prayed for his miracle. It might take eternity to know why this happened but every day there is bits and pieces of why. I think I am getting tired of the term tender mercies as it has been over used the last couple years but I love the word miracles...

Thursday, March 22, 2012

Changes again

Ok has been 13 months since my last post ........things have changed quite a bit since then. Gpa Leo passed away March 9 2011, Josh & Chiu-yi moved home a week later, Micah James was born Aug 10th at KMC. Josh spent way to much time at KMC with health issues last summer got out Aug 9 baby came next day so he/she were back to the blue zoo. A much happier reason. He needs a kidney transplant and is on the list. I was his transplant but the last test showed I had my own set of kidney issues.

Scott got his ok to serve a mission, WE got the paper work turned in, he turned 19, killed 2 deer then off to MTC/New Hampshire in early Dec. He packed into 3 months 2 yrs. worth because his leukimia returned and he has flown home and living back at Sacred Heart Medical Center for a month killing off his bone marrow and hoping for a bone marrow transplant in Seattle. I will try and keep up with any new progress with the blog again .........easier than constant phone calls...Expect a miracle is my own personal app!!!